Community Groups

• Facebook Achromatopsia Support Network
• Facebook Achromatopsia group
• The Achromatopsia Support Group at Groups.io (which was formerly the Yahoo! Achromatopsia-Group) is currently less active than the Facebook groups but has a large searchable archive that predates Facebook.

Peers are often the best source of information! These are just the ones I engage with, there are many others (although less active) you can find by searching “achromatopsia” on social platforms…

Before the internet there was Frances Futterman

• Book I—Understanding and Coping with Achromatopsia (pages 57–114 are all about tinted lenses!)
• Book II—Living with Achromatopsia (not the book with info on glasses)
• These resources are also available from a mirrored version of Frances Futterman’s old Achromatopsia Network homepage

Optometrists

• Berkeley, CA: Dr. Gunilla Haegerstrom–Portnoy, e-mail  ghp@berkeley.edu, phone 510-642-9966, 2009 Info Sheet.
• The Achromatopsia Clinic at The Low Vision Centers of Indiana
• Boston, MA: Dr. Kathryn Miller, Boston Children’s Hospital
• The Spectacle Shoppe (ask for Moe).