My daughter has achromatopsia. There is a lot to learn as a parent of a small child with achromatopsia. Just figuring out a diagnosis can be a challenge. I’ve learned a lot from other parents in the same situation as well as adults with achromatopsia, and still have more to learn. This is my space to share what I’ve figured out so far.
I’ll start with what I can help with most: Getting the right sunglasses—they can be life changing!
I hope you enjoy the site. Feel free to e-mail me at email@example.com, Best wishes –Michael